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Posted by Susan Hartman on April 21, 2006, 9:18 am
On All Things Considered this morning (4/21) there was a report about
Chronic Fatigue Syndrome, that 14 papers have just been published about
the disease and they've identified some common factors that make it
identifiable as a specific disease.
The study model was interesting: Find a bunch of people with the disease
and poke and prod them for a few days and gather every tiny bit of test
info and number-crunch the results. It's yielded 14 papers out of four
research groups who were supplied with all the raw data. It's a model
they may repeat for other diseases.
Sue
--
--
Susan Hartman/Dirty Linen
The Magazine of Folk and World Music
http://www.dirtylinen.com
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Posted by Heather in NY on April 21, 2006, 10:23 am
Thanks Susan, you beat me to it. Very interesting to me (I've got a
friend who went through hell to get her diagnosis) was the fact that
they have found 5 specific genetic sites that have an impact on
developing CFS. (No one site causes it, but all five are clearly
indicating collective causality from what I read.) Becky can't wait to
rub it in to the "don't believe it exists anywhere other than the mind"
doctors next time she hits one...
Heather
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Posted by Jere Williams on April 21, 2006, 10:43 am
Ah yes, all in your mind. I saw an ENT doc once who told me it was yeast.
--
Jere
show/hide quoted text
> Thanks Susan, you beat me to it. Very interesting to me (I've got a
> friend who went through hell to get her diagnosis) was the fact that
> they have found 5 specific genetic sites that have an impact on
> developing CFS. (No one site causes it, but all five are clearly
> indicating collective causality from what I read.) Becky can't wait to
> rub it in to the "don't believe it exists anywhere other than the mind"
> doctors next time she hits one...
> Heather
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Posted by Jangchub on April 21, 2006, 4:52 pm
On 21 Apr 2006 07:23:51 -0700, "Heather in NY"
show/hide quoted text
>Thanks Susan, you beat me to it. Very interesting to me (I've got a
>friend who went through hell to get her diagnosis) was the fact that
>they have found 5 specific genetic sites that have an impact on
>developing CFS. (No one site causes it, but all five are clearly
>indicating collective causality from what I read.) Becky can't wait to
>rub it in to the "don't believe it exists anywhere other than the mind"
>doctors next time she hits one...
>Heather
no doctor has ever told me it was in my mind, however, FMS, CMS are
both syndromes, not diseases and certainly not degenerative, which is
criteria for being a disease.
My doctor has explained to me that the WAY I perceive pain and/or
energy levels is not processed by my brain the way others process pain
or fatigue. It doesn't mean it isn't there, it means that because of
a mind/body connection with the cause and effect, the brain can
amplify pain and fatigue.
I am doing this year long horror story Infergen now. I have so little
oxygen in my blood that I can't lift my arms for more than 20 seconds.
I can't stitch, walk, go food shopping, shower, clean the house, read,
or do any of the things I love doing as a homemaker. I am taking
Procrit injections once a week now. I took my fourth shot on
Wednesday, but I see no energy boost. It can take six weeks for the
bone marrow to respond to the Procrit and start making red blood
cells, which are hovering at a blood count of 7.
Fortunately, the treatment is only 48 weeks and I have already done 8
weeks. Yay.
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Posted by Karen C - California on April 21, 2006, 12:14 pm
Thanks, Sue.
I had gotten the CFIDS.org press release about it, but haven't had time
to read the actual papers yet.
My "VP of Research" excerpted one that confirms CFS is as disabling as
MS or COPD. That alone should help. However, "VP for Political Action"
sent me a quick e-mail that he's not happy with them, but I haven't had
time to discuss what it is that he's not happy with ... I have another 3
days of trial to proofread before I can start my weekend.
--
Karen C - California
www.CFSfacts.org where we give you the facts and dispel the myths
Finished 4/8/06 - needlepoint calendar canvas for June
WIP: Getting all the UFOs done, July birthstone, Flowers of
Hawaii (Jeanette Crews) for ME!!!
Retrieved from UFO pile: Marbek's Snow Angel
LTR: Fireman's Prayer (#2), Amid Amish Life, Angel of Autumn,
Calif Sampler, Holiday Snowglobe
See my designs exclusively at www.TyWolfeDesigns.com
Editor/Proofreader http://hometown.aol.com/kmc528/KMC.html
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> friend who went through hell to get her diagnosis) was the fact that
> they have found 5 specific genetic sites that have an impact on
> developing CFS. (No one site causes it, but all five are clearly
> indicating collective causality from what I read.) Becky can't wait to
> rub it in to the "don't believe it exists anywhere other than the mind"
> doctors next time she hits one...
> Heather