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Posted by Anne Rogers on September 10, 2009, 12:57 am
Amen to that! I have lived with pain from being a small child, due to
Ehlers Danlos Syndrome. Narcotics have, when necessary, given me huge
benefit, sometimes allowing me to do physical therapy and in the really
bad times literally enabling me to go to the toilet and to sleep. I'm so
thankful for my doctor who prescribes to me what is necessary, I'm
allergic to antinflamatories, so I'd be in trouble if they weren't an
option.
Cheers
Anne
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Posted by Dr. Zachary Smith on September 10, 2009, 11:38 am
show/hide quoted text
> Amen to that! I have lived with pain from being a small child, due to
> Ehlers Danlos Syndrome. Narcotics have, when necessary, given me huge
> benefit, sometimes allowing me to do physical therapy and in the really
> bad times literally enabling me to go to the toilet and to sleep. I'm so
> thankful for my doctor who prescribes to me what is necessary, I'm
> allergic to antinflamatories, so I'd be in trouble if they weren't an
> option.
> Cheers
> Anne
Hang in there and keep the faith!
Doc
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Posted by Belinda Alene on September 10, 2009, 1:56 pm
It is important to look at all possible sources causing the pain. Odd things
can be the cause. Depression can aggravate or even create pain. Sleeping too
curled can be a cause. Too short a chair can cause problems with both the legs
and lower back. Weight from a purse/ book bag/ briefcase can cause pain.
Sometimes pain in the shoulders or muscles near the shoulder can be reduced or
totally relieved by standing in a corner, place both hands at shoulder height
and lean into the corner. This helps stretch these muscles back to the length
they should be. I thought this was nuts when first told to try it, but did the
exercise anyway. After a few weeks the chronic pain in my upper chest/
shoulders went away. I also learned to roll my shoulder back when sleeping
instead of curling up in a ball. I also try to maintain better posture when
working my various crafts. Many small changes have lead to less to no pain and
more work accomplished without using any drugs.
On Wed, 9 Sep 2009 18:25:45 -0700 (PDT), "Dr. Zachary Smith"
show/hide quoted text
>www.painfoundation.org
>From: http://www.painfoundation.org/take-action/conquering-pain-together/
>"Pain is a growing national public health crisis that affects an
>estimated 76.5 million people and has serious economic ramifications."
>"A hallmark of many chronic conditions, pain affects more Americans
>than diabetes, heart disease and cancer combined."
>"Despite this prevalence, access to appropriate and effective pain
>care remains a barrier for many Americans."
>"These barriers disproportionately affect women and minorities."
>...and much, MUCH more...
>Dr. Zachary Smith
>Oh, the pain... THE PAIN...
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Posted by Dr. Zachary Smith on September 10, 2009, 2:47 pm
Belinda,
There's nothing wrong or incorrect about anything you say, and I/we do
appreciate your good intentions; what you've laid out makes perfect
sense for someone who suddenly finds themselves in pain they can't
understand, BUT... (And thank you for making my day - I haven't
ROTFLMAO so hard in quite a while and I really needed that...) you
have NO IDEA (in my case) who you're responding to... I went through
all that stuff many years ago in the first few months of my... um...
journey. I've been through more testing and prodding than Arlo
Guthrie in the "Alice's Restaurant Massacree with full orchestration
and five part harmony and stuff like that..." At one point when
writing my first advocacy presentation. I coined the term, "guinea pig
complex" (though I won't claim credit only because someone likely came
up with the same term before me) from being shuffled from doctor after
doctor, test after test, therapy/drug after therapy/drug... because
nobody knew a damned thing and I felt like a guinea pig being used for
testing their pet theories and drugs. My chronic intractible pain is
WELL documented, accepted by my team of physicians without question,
and I promise you, the real McCoy. I have actually had doctors (more
than one), after looking at my films, say to my face, "Wow, no wonder
you're in so much pain!" and to loosely (VERY loosely) paraphrase J.,
there isn't a damned thing any of them can do about it.
I apologize if any of the above has offended you. Some of us have
been through SO much we have become jaded and hardened to well-meaning
people, yet we are some of the most vulnerable people on earth. The
only people who have things as bad as us "painees/painies" (another
term I coined, but probably not first) are those saints who are our
caregivers, who have to put up with all the **** we dish out as well
as watching us struggle to do day-to-day things most people take for
granted (if we even can).
Ok, that was MY vent for the day. As I mentioned before, it's been a
really bad week for me. I hope everyone reading this can find a
little understanding, if not forgiveness, in their hearts.
Doc
wrote:
show/hide quoted text
> It is important to look at all possible sources causing the pain. =A0Odd =
things
show/hide quoted text
> can be the cause. =A0Depression can aggravate or even create pain. =A0Sle=
eping too
show/hide quoted text
> curled can be a cause. =A0Too short a chair can cause problems with both =
the legs
show/hide quoted text
> and lower back. =A0Weight from a purse/ book bag/ briefcase can cause pai=
n.
show/hide quoted text
> Sometimes pain in the shoulders or muscles near the shoulder can be reduc=
ed or
show/hide quoted text
> totally relieved by standing in a corner, place both hands at shoulder he=
ight
show/hide quoted text
> and lean into the corner. =A0This helps stretch these muscles back to the=
length
show/hide quoted text
> they should be. =A0I thought this was nuts when first told to try it, but=
did the
show/hide quoted text
> exercise anyway. =A0After a few weeks the chronic pain in my upper chest/
> shoulders went away. =A0I also learned to roll my shoulder back when slee=
ping
show/hide quoted text
> instead of curling up in a ball. =A0I also try to maintain better posture=
when
show/hide quoted text
> working my various crafts. =A0Many small changes have lead to less to no =
pain and
show/hide quoted text
> more work accomplished without using any drugs.
> On Wed, 9 Sep 2009 18:25:45 -0700 (PDT), "Dr. Zachary Smith"
> >www.painfoundation.org
> >From:http://www.painfoundation.org/take-action/conquering-pain-together/
> >"Pain is a growing national public health crisis that affects an
> >estimated 76.5 million people and has serious economic ramifications."
> >"A hallmark of many chronic conditions, pain affects more Americans
> >than diabetes, heart disease and cancer combined."
> >"Despite this prevalence, access to appropriate and effective pain
> >care remains a barrier for many Americans."
> >"These barriers disproportionately affect women and minorities."
> >...and much, MUCH more...
> >Dr. Zachary Smith
> >Oh, the pain... THE PAIN...- Hide quoted text -
> - Show quoted text -
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Posted by Belinda Alene on September 11, 2009, 1:28 pm
Dear Doctor,
I am not offended in any manner. I was just adding my two cents because I see
too many people in pain because of lifestyle or diet habits. And yes I am very
aware of some of the problems of chronic pain. My Father used a 2x4 as a paddle
when I was eleven because I missed dusting a door frame top while cleaning. He
cracked my left hip and it was never treated. Add to that damage due to being
four years in a marching band where the step used caused damage to foot arches,
knees, ankles. Add to that being an active farm youngster who jumped out of too
many hay lofts and trees. Add falling off or being thrown by a galloping horse
a few times. Since about 20 years of age I have had to use a cane from time to
time to be able to walk with the pain. Since age 48 I have now spent all that
time walking with a cane. A darling number with an expandable seat so I can
stop to rest as needed. I use the store provided electric chairs when shopping
and do little shopping in large stores without those power chairs.
A little over ten years ago I was told by a doctor that if I did not have both
hips and both knees replaced I would indeed be in a wheel chair within six
months. I did not have the surgery and am not yet in that wheel chair. It has
not been easy, but between various exercises, vitamin/ mineral supplements, and
some days not able to leave the bed I still walk most days. Several other
doctors consulted at that time agreed with the diagnosis.
They also all agreed that I had sever arthritis. The sever arthritis turned out
to be a pinched nerve that none of them would acknowledge. Which is what I
thought it was and had confirmed with treatment by a chiropractor. I had lost
complete use of the left arm in two days with that pinched nerve. I now have
full use of that arm with minor numbness in the index finger as the only
remaining problem. The nerve pinch was in the left shoulder as a result of a
school bus at good speed backing into my stalled vehicle and dragging my stalled
vehicle six feet. My stalled vehicle was a 3/4 ton van. No real damage to the
school bus beyond dust marks, my van was totaled.
No, my pain is nowhere close to what you have to handle, but for some of us
better posture, better diet and some basic exercises can relieve a lot of pain.
Take care of yourself.
On Thu, 10 Sep 2009 11:47:36 -0700 (PDT), "Dr. Zachary Smith"
show/hide quoted text
>Belinda,
>There's nothing wrong or incorrect about anything you say, and I/we do
>appreciate your good intentions; what you've laid out makes perfect
>sense for someone who suddenly finds themselves in pain they can't
>understand, BUT... (And thank you for making my day - I haven't
>ROTFLMAO so hard in quite a while and I really needed that...) you
>have NO IDEA (in my case) who you're responding to... I went through
>all that stuff many years ago in the first few months of my... um...
>journey. I've been through more testing and prodding than Arlo
>Guthrie in the "Alice's Restaurant Massacree with full orchestration
>and five part harmony and stuff like that..." At one point when
>writing my first advocacy presentation. I coined the term, "guinea pig
>complex" (though I won't claim credit only because someone likely came
>up with the same term before me) from being shuffled from doctor after
>doctor, test after test, therapy/drug after therapy/drug... because
>nobody knew a damned thing and I felt like a guinea pig being used for
>testing their pet theories and drugs. My chronic intractible pain is
>WELL documented, accepted by my team of physicians without question,
>and I promise you, the real McCoy. I have actually had doctors (more
>than one), after looking at my films, say to my face, "Wow, no wonder
>you're in so much pain!" and to loosely (VERY loosely) paraphrase J.,
>there isn't a damned thing any of them can do about it.
>I apologize if any of the above has offended you. Some of us have
>been through SO much we have become jaded and hardened to well-meaning
>people, yet we are some of the most vulnerable people on earth. The
>only people who have things as bad as us "painees/painies" (another
>term I coined, but probably not first) are those saints who are our
>caregivers, who have to put up with all the **** we dish out as well
>as watching us struggle to do day-to-day things most people take for
>granted (if we even can).
>Ok, that was MY vent for the day. As I mentioned before, it's been a
>really bad week for me. I hope everyone reading this can find a
>little understanding, if not forgiveness, in their hearts.
>Doc
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> Ehlers Danlos Syndrome. Narcotics have, when necessary, given me huge
> benefit, sometimes allowing me to do physical therapy and in the really
> bad times literally enabling me to go to the toilet and to sleep. I'm so
> thankful for my doctor who prescribes to me what is necessary, I'm
> allergic to antinflamatories, so I'd be in trouble if they weren't an
> option.
> Cheers
> Anne