OT more desparate prayers needed - Page 5

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OT more desparate prayers needed Anne Rogers 10-02-2009
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Posted by Kate XXXXXX on October 4, 2009, 7:10 pm


Listpig wrote:
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Damned right! Add polymialgia rheumatica to that. My mum has developed
it. She now realizes just how lucky she is that she never suffered from
clinical depression, and only now sufferes from PR depression. As if
that isn't bad enough...

I get a lot of the puzzled looks. No-one has quite dared to tell me to
pull myself together.
--
Kate XXXXXX R.C.T.Q Madame Chef des Trolls
Lady Catherine, Wardrobe Mistress of the Chocolate Buttons
http://www.katedicey.co.uk
Click on Kate's Pages and explore!

Posted by Anne Rogers on October 4, 2009, 7:43 pm



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I have real physical causes for my pain and exhaustion, ehlers danlos
syndrome and narcolepsy, but most people still don't get it!

Honestly I think they play a huge part in my depression, I'm not in
constant pain, but it is almost daily pain and it can be severe, and add
in narcolepsy to looking after a newborn and your doomed!

Cheers
Anne

Posted by onetexsun on October 4, 2009, 11:22 pm


If I ever write a book it will be called "But You Don't LOOK Sick!"
For six years my life has been controlled by a rotating regimen of
pain, total fatigue, illness and meds. I don't look sick. When I'm the
sickest with a flare, I have bright, beautiful red blooms on my
cheeks. People inevitably say "Oh it's so good to see you looking
radiant and healthy again." And typically I have a high fever and am
in total pain and my response has to be "Thank you."

I know a lot of people on this board have silent and invisible
diseases. A lot of people in our society have them too. But you can't
tell by looking that our Ginger has lupus and pain and struggles to
stay active and works her buns off at a very responsible job. You
can't see Anne's depression - most people see a young mom with a
beautiful new baby and think "Oh lucky thing, she must be so happy."
You can't see polymialgia rheumatica, chronic fatigue syndrome, panic
disorder, fibromyalgia or a host of other life changing and sometimes
life threatening diseases.

One of the challenges facing bird owners is that you seldom see a sick
bird. They flit around, nibble on seed, ruffle their feathers and drop
dead. It's nature's way of keeping a diseased animal as safe as
possible so it might have a chance to recover from the illness. If a
bird looked sick, predators would eat it in a heartbeat. We aren't
birds, but I'm sure nature has worked the same tricks on us
evolutionarily. That just means we have to talk and talk and talk some
more. And ultimately I believe (and this is just my belief) that the
answer is compassion. Imagine the world if we every one made a
compassionate heart the center of our beings and the focus of our
lives.

Ok, off my soapbox. My roast has been in the crock pot for 8 hours and
isn't even vaguely tender yet so we all had Cream of Wheat for supper.
Tomorrow I'm chopping it up to make soup.

Hugs to all, Sunny

Posted by Kate XXXXXX on October 5, 2009, 3:28 am


Anne Rogers wrote:
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I do understand. To paraphrase, I try to take one type of depression at
a time, but sometimes several hit me at once.

I take a list of what *doesn't* hurt today when I wake up... And then I
add in the gloom factor: today were at about 3 for pain and 3 for
depression on a 1-10 scale. An OK day. Friend coming in for coffee and
book natter later, so I'd like to get the sitting room tidied and
hoovered before she gets here, but she won't worry if I don't. Once the
pain killers kick in and the joints have loosened up, things will feel a
bit better.

I find if I list the things that are affecting me today, I can set then
aside and get on a bit better, as I then know what I have to do
something about (take pain killers, for example) and do it, and what I
just have to sit out (gloomy weather depressing my mood, for example,
and weather changes affecting pain levels).

--
Kate XXXXXX R.C.T.Q Madame Chef des Trolls
Lady Catherine, Wardrobe Mistress of the Chocolate Buttons
http://www.katedicey.co.uk
Click on Kate's Pages and explore!

Posted by Joanna on October 3, 2009, 11:38 pm


Well said, thanx
Joanna

onetexsun wrote:
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